Question for James J. Berger, Designated Federal Officer overseeing the TBDWG

JUN 14, 2019 — 

We all know that late stage untreated Lyme is crippling to the patient which has gone largely unrecognized as depicted in the documentary “Under our Skin” so I want to drive home the message that HHS refuses to acknowledge the severity of Lyme which is just as disabling as other infections left untreated. I intend to press this issue until I do receive a response.

UNDER OUR SKIN extended trailer:

———- Original Message ———-
Cc: (97 Undisclosed recipients)
Date: June 13, 2019 at 9:12 AM
Subject: Question for James J. Berger, Designated Federal Officer overseeing the Tick-Borne Disease Working Group

Designated Federal Officers

Efforts of the Working Group are managed and supported by the Designated Federal Officer (DFO) and the Alternate DFO

June 13, 2019

Office of HIV/AIDS and Infectious Disease Policy
Office of the Assistant Secretary for Health
U.S. Department of Health and Human Services
Attn: James J. Berger, MS, MT (ASCP), SBB, Designated Federal Officer

Dear Mr. Berger,

Since you are the Designated Federal Officer overseeing the Tick-Borne Disease Working Group I have a vital question for you regarding a specific stage of Lyme disease.

With a master’s degree in immunohematology and applied biology, you should be well aware that untreated strep throatprogresses to rheumatic fever causing irreversible heart damage. Untreated syphilis leads to progressive disability and dementia, and untreated human immunodeficiency virus infection progresses to AIDS with significant disability and death. What happens to a patient with Lyme disease who goes months, years, or decades before diagnosis because of a false-negative serological test result, missing erythema migrans (Bull-eye rash) misdiagnosis etc.?

The editors of The Journal of the American Medical Association(JAMA) thought this question was rather significant and published my letter to the editor in the Dec 2018 issue. (See attachment) Doctors Wormser and Shapiro (who is a member of the Tick-Borne Disease Working Group) neglected to answer this question.

Controversies About Lyme Disease: (JAMA)

As the Designated Federal Officer, would you please answer the question regarding what happens to the Lyme patient left untreated for months, years or decades?

A prompt reply to this inquiry is requested and as you can see I have carbon copied Congressman Chris Smith and most of the group members.

Respectfully submitted,

Carl Tuttle

Lyme endemic Hudson, NH

The Tick-Borne Disease Working Group has 14 members – seven federal members and seven public members. Federal members…