The Runaway Plague

https://www.change.org/p/1120418/u/23184426?

The Runaway Plague

Carl Tuttle
Hudson, NH
AUG 25, 2018 —
Please see the following email sent to the Tick Borne Disease Working Group regarding some of my personal experiences with untreated Lyme disease.
The consequences of untreated Lyme disease have been deliberately ignored as the disease has been portrayed as “easily diagnosed and cured” while the disabled are labeled delusional.

——— Original Message ———-
From: Carl Tuttle <runagain@comcast.net>
To: jaucott2@jhmi.edu, tickbornedisease@hhs.gov
Cc: (30 recipients)
Date: August 24, 2018 at 9:48 AM
Subject: Re: Lyme Disease in 2018 What Is New (and What Is Not)

To the Tick Borne Disease Working Group,

Earlier in the month I spent four days in the hospital with a serious UTI that entered the bloodstream. (104 degree temperature) While waiting for the culture report (urine and blood) a number of IV antibiotics were administered; ciprofloxacin, ceftriaxone and vancomycin.

Culture results identified a staph infection. Unlike treating Lyme disease, there was no Jarisch–Herxheimer reaction [i] as I just progressively felt better each day as experienced when treating most infections.

In contrast, I experienced a Jarisch–Herxheimer reaction every day (sometimes twice per day) for sixteen months while on Dr. Donta’s Biaxin and plaquenil protocol. I could not tolerate tetracycline whatsoever as this antibiotic made me feel as if I were going to die. **My note:  This treatment is for tick borne illness.  Please see note at end**

I decided to go the IV antibiotic route after sixteen months on the oral protocol. I experienced a Jarisch–Herxheimer reaction on every IV antibiotic that was rotated including those mentioned previously in this note. After seven months with a PICC line and plateauing with no more Jarisch–Herxheimer reactions I decided I had enough but returned to the oral protocol when symptoms returned. I took antibiotics for nine years (2008-2017).

This is what happens when Lyme is left untreated for twelve years. I visited the emergency room of the Lahey Clinic in the summer of 1996 with the worst case of summer flu I have experienced. When the fatigue continued I was told I had Chronic Fatigue Syndrome and put out to pasture; bedridden and on oxygen in the fall of 2008 when finally diagnosed with late stage Lyme disease. (Never screened for Lyme in that 12yr period)

There is no IDSA treatment guideline for this (growing) class of patient with untreated Lyme as this stage has been ignored for three decades. It is like ignoring the fact that untreated strep throat progresses to rheumatic fever causing irreversible heart damage; untreated syphilis leads to progressive disability and dementia while untreated HIV infection progresses to AIDS with significant disability and death.

We know of three infections that produce Jarisch–Herxheimer reactions; Lyme, syphilis and typhoid fever. I have read that treating typhoid too aggressive could kill the patient from the endotoxin-like products released by the death of harmful microorganisms.
This “endotoxin-like” byproduct of treating Lyme disease should have been researched decades ago so that aggressive treatment could be better tolerated. I have heard stories of some patients severely ill with Lyme unable to take even the smallest dose of antibiotic.

Gary Wormser’s fixation on the acute stage of disease with bulls-eye rash and early treatment has left hundreds of thousands of horribly sick late stage Lyme patients with no short term treatment approach. The one-size-fits-all IDSA treatment guideline is useless and inappropriate for those who miss the narrow window of opportunity for successful short term treatment.

My years of untreated Lyme however progressed to follicular lymphoma. A Pubmed search of “Borrelia and lymphoma” will show that connection has been known for decades. If this is controversial then perform a second search using “Epstein Barr virus and lymphoma” and you will see hundreds of results. There is no disagreement within the medical community that EBV causes lymphoma. Laboratory results while under the care of Dr. Sam Donta often identified reactivated EBV so it would appear that untreated late stage Lyme is immunosuppressive allowing latent viruses to rear their ugly heads.

How would we know that rheumatic fever causes irreversible heart damage if the study subjects recruited were still in the strep throat stage of disease? This is exactly what continues today with Lyme research. It’s time to determine how untreated Lyme disables its victim as this runaway plague [ii] is destroying lives, ending careers and leaving patients in financial ruin.

The racketeering scheme identified in the SHRADER & ASSOCIATES, LLP RICO lawsuit intentionally ignores Lyme as a horribly disabling infection so insurance companies could deny health and disability claims. Let’s stop turning a blind eye to the fact that the Centers for Disease Control have aligned itself with the seven defendants identified in this lawsuit.

Until those responsible for this travesty have been removed from positions of authority we will have another three decades of unimaginable pain and suffering. It’s like putting Pablo Escobar [iii] in charge of the opioid crisis and expecting change.

Move Lyme disease to HIGHEST ALERT and initiate a Manhattan Project to determine how untreated Lyme disables its victim.

Sincerely,
-Carl Tuttle
References:

[i] The Jarisch–Herxheimer Reaction After Antibiotic Treatment of Spirochetal Infections: A Review of Recent Cases and Our Understanding of Pathogenesis
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5239707/

[ii] Lyme Disease Striking More Americans in More States
https://consumer.healthday.com/diseases-and-conditions-information-37/lyme-disease-news-454/lyme-disease-striking-more-americans-in-more-states-736298.html

[iii] Pablo Escobar COLOMBIAN CRIMINAL (Deceased)
https://www.britannica.com/biography/Pablo-Escobar

Follicular Lymphoma: What You Need to Know | Symptoms and Signs                    Follicular lymphoma is a non-Hodgkin’s type of lymphoma, originating in the B lymphocytes, or B-cells, and it is the most common form of slow-growing disease.  https://lymphomanewstoday.com

_______________

**Comment**

This letter points out some incredibly important points.

  1. Tick borne illness is a complex illness that needs to be recognized and dealt with appropriately.
  2. The Jarisch–Herxheimer reaction is a very real phenomenon and is one of the challenges of treatment.  I tell patients the treatment’s as bad as the disease so buckle up for a wild ride:  https://madisonarealymesupportgroup.com/2015/08/15/herxheimer-die-off-reaction-explained/
  3. Tick borne illness should be in the back of every doctor’s mind.  Testing is abysmal so being educated in symptomology is required:  https://madisonarealymesupportgroup.com/2018/02/19/calling-all-doctors-please-become-educated-regarding-tick-borne-illness-heres-how/
  4. The lack of appropriate treatment guidelines is killing people.  Watch the documentary, “Under Our Skin,” to learn of the collusion of more than half of those sitting on the CDC panel who have patents with pharmaceutical companies.  According to Dr. Sam Donta, the panel never covered the chronic stage of Lyme but due to lack of time, left it to Wormser who essentially threw it out completely which is why it isn’t recognized today.
  5. While tick borne illness can reactivate latent viruses,  vaccines can activate latent tick borne infections:  https://madisonarealymesupportgroup.com/2017/12/02/scottish-doctor-on-lyme-msids-part-2/  Here, the HPV vaccine activated a latent Lyme/MSIDS infection and here https://madisonarealymesupportgroup.com/2016/04/24/gardasil-and-bartonella/ the HPV vaccine activated a latent Bartonella infection.

Hardly any research has looked at the five issues above and/or thousands of others that are crucial in understanding this plague.  Everyone’s smitten with climate change which according to independent tick researcher is a red herring:  https://madisonarealymesupportgroup.com/2018/08/13/study-shows-lyme-not-propelled-by-climate-change/  Until we focus on the issues that are going to help patients, nothing will change.