Madison Area Lyme Support Group

Patient and advocate input needed.  Public comment can be made in person (pre-registration is advisable) or in writing.  Please see specifics below.

https://www.hhs.gov/live/index.html  (Live Streaming)

 

Agenda:  https://www.hhs.gov/ash/advisory-committees/tickbornedisease/meetings/2017-12-11/index.html

 

Meetings 1 and 2 of the Tick-Borne Disease Working Group (federal advisory committee) will be held in the Great Hall of the Hubert H. Humphrey Building, 200 Independence Avenue, SW, Washington, DC, 20201.

Members of the public may attend the meeting in person or via webcast https://www.hhs.gov/live/live-1/index.html#8408.

In-person Attendance

The meetings are limited to space available; therefore pre-registration exit disclaimer icon for public members is advisable and can be accomplished by registering by Friday, December 8, 2017.
On the day of each meeting, seating will be provided first to persons who have preregistered. People who have not preregistered will be accommodated on a first come, first served basis if additional seats are still available 10 minutes before the meeting starts.
Non-U.S. citizens who plan to attend in person are required to provide additional information and must notify the Working Group support staff via email at tickbornedisease@hhs.gov on or before November 30, 2017.
You will need a photo ID such as your driver’s license for admission. Please allow extra time to get through security.
All in-person attendees must sign-in at the desk located in the lobby past the security desks; a staff member will be there to assist you.

Opportunity for Public Comment

The Working Group invites public comment on issues related to the Working Group’s charge.
Public comment may be provided in-person at the meetings or in writing. Persons who wish to provide public comment in person should submit a request to do so via email at tickbornedisease@hhs.gov on or before December 1, 2017.

In-person comments will be limited to three minutes each to accommodate as many speakers as possible. A total of 30 to 60 minutes will be allocated to public comment and will be divided between the two meetings on December 11 and 12. If more requests are received than can be accommodated, speakers will be randomly selected. The nature of the comments will not be considered in making this selection.
Public comment may also be provided in writing only. Individuals who would like to provide written public comment should send their comments to tickbornedisease@hhs.gov on or before December 6, 2017.

Agenda

Tick-Borne Disease Working Group–Meeting One

December 11, 2017

Hubert H. Humphrey Building, Great Hall

200 Independence Ave, SW

Washington, DC 20201

Meeting One

12:00

Doors Open—arrive no later than 12:15 to allow time to pass through security

Working Group

12:30

Official Welcome and Swearing in of Members

Richard Wolitski, HHS/OASH

Designated Federal Officer

Don Wright

Acting Assistant Secretary for Health (OASH)

12:45

Welcome from the Working Group

John Aucott, Chair, Johns Hopkins University School of Medicine

Kristen Honey, Vice Chair/OMB

1:00

Member Introductions

Working Group Members

1:15

Overview of the Working Group’s Charter

Richard Wolitski, HHS/OASH

Designated Federal Officer

2:00

What We Hope to Accomplish Today

John Aucott, Chair, Johns Hopkins University School of Medicine

Kristen Honey, Vice Chair/OMB

2:15

Break

Listening to the Patient Organization Perspectives

2:30

Introduction of Facilitator

Kristen Honey, Vice Chair/OMB

2:35

Introduction to Stakeholder Presentations

Dazon Dixon Diallo, SisterLove, Atlanta, GA

2:40

Key Stakeholder Presentation 1

2:50

Key Stakeholder Presentation 2

3:00

Introduction to Public Comment

Dazon Diallo, SisterLove, Atlanta, GA

3:10

Public Comment

4:00

Preview of Meeting 2, Closing, and Adjourn Meeting

Richard Wolitski, HHS/OASH

Designated Federal Officer

 

Tick-Borne Disease Working Group–Meeting Two

December 12, 2017

Hubert H. Humphrey Building, Great Hall

200 Independence Ave, SW

Washington, DC 20201

Meeting Two

8:30

Doors Open—arrive no later than 8:15 to allow time to pass through security

9:00

· Welcome

· Summary of Meeting One

· Goals and Agenda for Meeting Two

John Aucott, Chair, Johns Hopkins University School of Medicine

Kristen Honey, Vice Chair/OMB

Organizational Perspectives: Health Care Providers

9:20

Stakeholder Perspective 1

9:30

Stakeholder Perspective 2

9:40

Stakeholder Perspective 3

Organizational Perspectives: Public Health

9:55

Stakeholder Perspective 1

10:05

Stakeholder Perspective 2

10:15

Introduction to Public Comment

John Aucott, Chair, Johns Hopkins University School of Medicine

Kristen Honey, Vice Chair/OMB

10:20

Public Comment

11:05

Short Break

11:15

Roles and Responsibilities of the Working Group and Voting Procedures

Richard Wolitski, HHS/OASH

Designated Federal Officer

11:25

Review and Discussion of the Charter

11:35

Discussion of Proposed Vision and Mission Statement

John Aucott, Chair, Johns Hopkins University School of Medicine

Kristen Honey, Vice Chair/OMB

11:50

Discussion of Working Group Values

John Aucott, Chair, Johns Hopkins University School of Medicine

Kristen Honey, Vice Chair/OMB

12:10

Lunch

Work Plan Development

1:10

Discuss Timeline and Tasks to be Completed

Richard Wolitski, HHS/OASH

Designated Federal Officer

John Aucott, Chair, Johns Hopkins University School of Medicine

Kristen Honey, Vice Chair/OMB

2:05

Discuss and Potential Role of Subcommittees

Discuss and Vote on Need for Subcommittees Types and Number of Subcommittees

2:35

Discuss and Vote on Processes for:

· Identification of Subcommittee Members Selection of Subcommittee Members

· How to Ensure Membership is Balanced Coordination of Efforts with Working Group

3:05

Re-review Timeline and Make Additions and Changes as Needed

3:25

Discuss and Vote on Potential Upcoming Meetings for:

· Full Working Group

· First Meetings of Subcommittee

· Additional Stakeholder Input or Public Comment

4:00

Adjourn

Richard Wolitski, HHS/OASH

Designated Federal Officer

_______________

More on the working group:  https://madisonarealymesupportgroup.com/2017/11/22/tbi-working-group-members-named/  (Gary Wormser is no longer on the group)  This link also gives the specific bill language.

https://madisonarealymesupportgroup.com/2017/07/15/tbi-working-group-announced/  The working group will assist HHS in its efforts to conduct and support epidemiological, basic, translational and clinical research related to vector-borne diseases, including tick-borne diseases. The working group will function as a Federal Advisory Committee and its activities will be overseen by HHS’s Office of the Assistant Secretary for Health.

The working group’s mission will be to review all the efforts within HHS related to tick-borne diseases, to examine research priorities, to help ensure interagency coordination and to minimize overlap. The working group will be made up of representatives from both federal and non-federal agencies and entities.