It was a joy to be able to speak about the plight of Lyme patients yesterday at the Wisconsin State Capital. Thank you to those who were able to make it. Thankfully, I only paid physically for the rest of the night and bounced back this morning. I know many of you will have longer recoveries – but it was worth it!
Here is the link to the hearing. I warn you – it’s over three and a half hours long but worth the listening. You will hear from numerous patients with typically horrific stories, representatives from our State, an infectious disease doctor who is a card carrying member of the CDC, and Lyme advocates. It was clear throughout the hearing that while some members of the board were quite familiar and up to date, many had no idea of what we face. A lot of education still needs to be done in this area. I have sent an email to each board member with links and a bibliography to back up everything from the witch-hunts on our LLMD’s, testing flaws, modes of transmission, the inadequacies of treatment, and much more. If they choose to read it, they will be informed, but from the conversion yesterday, it was clear many didn’t read my previous email, so there is still much ground work to be done. I speak at approximately 2:40. For any of you who wish to have a copy of my letters to the representatives, please email me and I will send you a copy.
Keep your chins up!